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Family caregivers’ experiences of discussing their needs with a nurse during specialised home care utilizing the carer support needs assessment tool intervention: A qualitative study
Marie Cederschiöld University, Department of Health Care Sciences, Palliative Research Centre, PRC. Capio Palliative Care, Dalen Hospital, 121 87, Stockholm, Sweden.
Department of Nursing Science, Sophiahemmet University, Stockholm.
Faculty of Health and Life Sciences, Linnaeus University, Kalmar; Department of Research, Region Kalmar County, Kalmar.
Division of Nursing, Midwifery & Social Care, Faculty of Biology, Medicine and Health, University of Manchester, Manchester, United Kingdom.
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2023 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 66, article id 102412Article in journal (Refereed) Published
Abstract [en]

Purpose The Carer Support Needs Assessment Tool Intervention (CSNAT-I) was designed to help family caregivers identify, reflect upon, and express their support needs in a conversation with a health care professional and gain tailored support. The CSNAT-I has shown positive effects for both nurses and family caregivers but for more comprehensive understanding this study aims to examine family caregivers' experiences of discussing their needs with a nurse during specialised home care, utilizing the CSNAT-I.

Methods The study used an inductive qualitative descriptive design based on framework analysis. Data was collected using individual semi-structured telephone interviews with 10 family caregivers, with a median age of 66, from four specialised home care services.

Results Family caregivers appreciated having scheduled meetings with nurses utilizing the CSNAT-I which gave them an opportunity to focus on what was important to them. Family caregivers experienced that the conversations were co-created with a flexible dialogue. The conversations provided new perspectives and insights which helped in finding possible solutions. Family caregivers felt empowered by the co-created conversation and took on a more active role in involving the rest of their family to find support to themselves and the patients.

Conclusion The CSNAT-I can facilitate communication between family caregivers and nurses leading to adequate supportive inputs. The intervention gives family caregivers an increased opportunity to be involved in their own support, which may enhance their sense of security. According to family caregivers’ experiences, CSNAT-I may be an adequate way to support family caregivers to reflect and discuss their needs.

Place, publisher, year, edition, pages
2023. Vol. 66, article id 102412
Keywords [en]
Caregivers, Home care, Intervention, Palliative, Qualitative, Support
National Category
Nursing
Research subject
The Individual in the Welfare Society, Palliative Care
Identifiers
URN: urn:nbn:se:esh:diva-10405DOI: 10.1016/j.ejon.2023.102412PubMedID: 37742425OAI: oai:DiVA.org:esh-10405DiVA, id: diva2:1798981
Note

Publication status in dissertation: Accepted

Title in dissertation: Family caregivers’ experiences of talking with a nurse about their needs in a structured conversation using the Carer Support Needs Assessment Tool Intervention: A qualitative study in the context of specialised home care

Available from: 2023-09-20 Created: 2023-09-20 Last updated: 2025-09-22Bibliographically approved
In thesis
1. A person-centred approach to support family caregivers in specialised home care: The Carer Support Needs Assessment Tool Intervention
Open this publication in new window or tab >>A person-centred approach to support family caregivers in specialised home care: The Carer Support Needs Assessment Tool Intervention
2023 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Family caregivers are crucial providers of support and care for patients with lifethreatening illness and many report unmet support needs. With the use of quantitative and qualitative methods this thesis aimed to evaluate the Carer Support Needs Assessment Tool (CSNAT) and explore experiences and potential effects of utilising the Carer Support Needs Assessment Tool Intervention (CSNAT-I) among family caregivers and registered nurses in the context of specialised home care. The results showed that the CSNAT tool was valid and reliable for use among family caregivers in specialised home care (I). Family caregivers reported most the need for additional support concerning “Knowing what to expect in the future” (I, II). They reported and described how higher levels of need for more support were associated with poorer quality of life (II). The intervention was effective in significantly increasing family caregivers’ preparedness for caregiving (p = 0.002) (IV). Participating nurses expressed that their everyday clinical practice changed while learning to use the CSNAT-I and they experienced professional and personal growth (III). Their assessments and supportive inputs shifted from reactive towards proactive and more in collaboration with family caregivers. When utilizing the CSNAT-I, family caregivers experienced their conversations with nurses as co-created, providing new perspectives and insights which increased their involvement and helped in finding solutions (V).

In conclusion, this thesis gives further weight to the importance of addressing family caregivers' support needs as a part of nursing.

Place, publisher, year, edition, pages
Stockholm: Marie Cederschiöld högskola, 2023. p. 126
Series
Avhandlingsserie inom området Människan i välfärdssamhället, ISSN 2003-3699 ; 17
Keywords
Family caregivers, Home care, Intervention, Nursing, Palliative care, Preparedness, Quality of life, Support
National Category
Nursing
Research subject
The Individual in the Welfare Society, Palliative Care
Identifiers
urn:nbn:se:esh:diva-10404 (URN)978-91-985806-6-2 (ISBN)
Public defence
2023-10-13, Marie Cederschiöld högskola, 13:00
Opponent
Supervisors
Available from: 2023-09-22 Created: 2023-09-21 Last updated: 2025-09-22

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Norinder, MariaAlvariza, Anette

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