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Registered nurses' perceptions of food and mealtimes in palliative care: A cross-sectional study
Marie Cederschiöld University, Department of Health Care Sciences.ORCID iD: 0000-0001-6019-4335
Uppsala University, Sweden; Karolinska Institutet, Sweden.
Marie Cederschiöld University, Department of Health Care Sciences. Karolinska Institutet, Sweden.ORCID iD: 0000-0002-0197-9121
Boston College, USA; Uppsala University, Sweden.
2025 (English)In: BMC Palliative Care, E-ISSN 1472-684X, Vol. 24, no 1, article id 298Article in journal (Refereed) Published
Abstract [en]

Background: Food and mealtimes are fundamental aspects of human wellbeing, both considering physiologicalaspects of human life and social interactions. Since registered nurses are key caregivers in palliative care, the aim of this study was to explore registered nurses' perceptions of food and mealtimes in palliative care.

Methods: An exploratory and descriptive cross-sectional, study-specific survey, designed following a systematic review of the literature, was administered online. The study-specific questionnaire consisted of statements about mealtimes in palliative care, and registered nurses were asked to rate the extent to which they agreed with each statement. Using linear regression analysis associations between socio-demographic variables and registered nurses' perceptions were explored. Additionally, one open-ended question was analysed using deductive content analysis.

Results: Registered nurses (n=100) had a mean score of 3.3 on the 4-point scale, indicating agreement with the statements about food and mealtimes. Registered nurses agreed to the largest extent with statements concerning registered nurses' responsibilities (mean score 3.7), and to the least extent regarding food as improving health and wellbeing (mean score 2.8). Higher age among registered nurses was statistically significant and associated with a lower degree for food and mealtimes are perceived as distressing (P=0.004) for patients and family. The open-ended question about "what advice would you give a new colleague about food and mealtimes in palliative care?" pertained to the physical (56%), the social (14%), the psychological (9%), and the existential dimensions (4%), palliative care approach was covered by 17% of the text.

Conclusions: Registered nurses reported that food and mealtimes in palliative care cause distress for patients and families. They strongly agreed on the importance of addressing issues around food and mealtimes at the end of life, helping patients and families to understand that it is common to stop eating as death approaches. Advice to new colleagues focused mainly on physical care, with fewer registered nurses offering guidance on psychological, social, or existential dimensions. This study highlights the need for support in adopting a holistic approach to mealtimes in palliative care.

Place, publisher, year, edition, pages
2025. Vol. 24, no 1, article id 298
Keywords [en]
Caring, Eating problems, End-of-life, Families, Mealtime, Nursing, Nutrition, Palliative care, Patients, Perceptions
National Category
Nursing Palliative Medicine and Palliative Care
Research subject
The Individual in the Welfare Society, Palliative Care
Identifiers
URN: urn:nbn:se:esh:diva-9424DOI: 10.1186/s12904-025-01935-8ISI: 001649730900001PubMedID: 41318431OAI: oai:DiVA.org:esh-9424DiVA, id: diva2:1640306
Available from: 2026-01-08 Created: 2022-02-24 Last updated: 2026-01-08Bibliographically approved
In thesis
1. Mealtimes in palliative care contexts: Perspectives of patients, partners, and registered nurses
Open this publication in new window or tab >>Mealtimes in palliative care contexts: Perspectives of patients, partners, and registered nurses
2022 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The overall aim was to explore patients’, partners’, and registered nurses’ (RNs)experiences of mealtimes in palliative care contexts. Qualitative (studies I, II, IVand V) and quantitative (study IV) study designs were used to explore the experiences of mealtimes in palliative care from various perspectives. Three interview studies (studies I, II, V), a mixed-method systematic review (study III),and a cross-sectional study (study IV), were conducted. The findings showed that patient’s appreciated support that resembled their needs and wishes during hampered eating. Being encouraged to eat could both reduce and induce distress and well-being, social life was affected. Food and eating had existential loading (I, III). The partners described how they tried to support their dying partner by striving to maintain ordinariness around food and mealtimes, as well as finding new ways to support eating (II). RNs highlighted that food and mealtimes in palliative care cause psychosocial distress for patients and their families. Exploration implies that RNs perceptions align with patients’and families’, indicating awareness of the challenges that patients and families face (IV). RNs in palliative care are well prepared to support patients with eating challenges related to physical problems, but might be less prepared to support existential, psychological, and social needs (V).In conclusion, efforts to minimize the distress that patients and families experience in relation to mealtimes in palliative care are required. An area in need of further development is how to support RNs in communicating about food and mealtimes in palliative care to support patients’, partners’, and families’ well-being at the patient’s end-of-life.

Place, publisher, year, edition, pages
Stockholm: Marie Cederschiöld University, 2022. p. 110
Series
Avhandlingsserie inom området Människan i välfärdssamhället, ISSN 2003-3699 ; 14
Keywords
End-of-life, Family, Food, Mealtimes, Nursing, Nutrition, Palliative care, Partner, Patient perspectives, Registered nurses
National Category
Nursing
Research subject
The Individual in the Welfare Society, Palliative Care
Identifiers
urn:nbn:se:esh:diva-9425 (URN)978-91-985806-3-1 (ISBN)
Public defence
2022-04-08, 09:00
Opponent
Supervisors
Available from: 2022-03-11 Created: 2022-02-24 Last updated: 2025-09-22

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Wallin, ViktoriaLundh Hagelin, Carina

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