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Expectations and motives for nominating a family caregiver to partake in a web-based psychoeducational intervention: Perspectives of patients with advanced illness in palliative care
Marie Cederschiöld University, Department of Health Care Sciences. Sophiahemmet University, Sweden.ORCID iD: 0000-0002-8780-5922
Marie Cederschiöld University, Department of Health Care Sciences.ORCID iD: 0000-0001-6019-4335
Marie Cederschiöld University, Department of Health Care Sciences. University College London, UK; Karolinska Institutet, Sweden.ORCID iD: 0000-0002-8185-781x
Marie Cederschiöld University, Department of Health Care Sciences. Stockholms Sjukhem, Sweden.ORCID iD: 0000-0003-2711-0245
2026 (English)In: Supportive Care in Cancer, ISSN 0941-4355, E-ISSN 1433-7339, Vol. 34, article id 880Article in journal (Refereed) Published
Abstract [en]

Purpose: The field of support interventions targeting family caregivers in palliative care is growing, yet little is known aboutthe patient's perspective when a family caregiver partakes. This study explored what patients in specialized palliative homecare expected from, and what motives they had for nominating a family caregiver to partake in, a family caregiver-targeted web-based psychoeducational intervention.

Methods: This qualitative study is part of a randomized controlled trial evaluating the effects of the family caregiver-targetedweb-based psychoeducational intervention "narstaende.se." Patients were recruited from specialized palliative home care services after their family caregiver had participated in the intervention arm of the trial. The present study had a qualitative approach using an interpretive descriptive design. Twenty-two interviews were conducted.

Results: The patients nominated family caregivers out of concern and recognition of the burden they faced and wished for the family caregivers to be offered support. The patients' choice was mindful, and they refrained from nominating persons whom they perceived as too frail or busy. They expected the intervention would encourage conversations about emotions, illness and the future.

Conclusion: Patients with life-threatening illnesses enrolled in specialized palliative home care nominated their family caregiver for a family caregiver-targeted web-based psychoeducational intervention out of love, guilt, and responsibility. They expected to approach topics that had previously been avoided and could see potential benefits also for themselves.The study reinforces the implications for support for family caregivers when organizing and providing care for patients with life-threatening illness.

Place, publisher, year, edition, pages
2026. Vol. 34, article id 880
Keywords [en]
Cancer, Family caregiver, Home care services, Internet-based intervention, Oncology, Palliative care
National Category
Nursing Palliative Medicine and Palliative Care
Research subject
The Individual in the Welfare Society, Palliative Care
Identifiers
URN: urn:nbn:se:esh:diva-12356DOI: 10.1007/s00520-026-11105-yISI: 001854465800001PubMedID: 42624933OAI: oai:DiVA.org:esh-12356DiVA, id: diva2:2102547
Available from: 2026-09-21 Created: 2026-09-17 Last updated: 2026-09-21Bibliographically approved

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Doveson, SandraWallin, ViktoriaKreicbergs, UlrikaAlvariza, Anette

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910111213141512 of 36
CiteExportLink to record
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Citation style
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