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Associations between support needs and preparedness among family caregivers in palliative home care
Marie Cederschiöld University, Department of Health Care Sciences.ORCID iD: 0000-0003-4315-7676
Linnaeus University, Sweden; Region Kalmar County, Sweden.
Marie Cederschiöld University, Department of Health Care Sciences.ORCID iD: 0000-0001-6019-4335
Karolinska Institute, Sweden; Ersta Diakoni, Sweden.
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2026 (English)In: International Journal of Palliative Nursing, ISSN 1357-6321, E-ISSN 2052-286X, Vol. 32, no 5, p. 232-240Article in journal (Refereed) Published
Abstract [en]

Background: Family caregivers take on substantial caregiving responsibilities and report unmet support needs of their own when caring for a person with life-threatening illness.

Aim: To explore self-rated support needs and their association with preparedness for caregiving among family caregivers in specialised palliative home care.

Methods: Family caregivers of patients with life-threatening illness were recruited. Family caregivers completed questionnaires at baseline and 4 weeks later, including the Preparedness for Caregiving Scale and the Carer Support Needs Assessment Tool. Descriptive statistics and linear regression analyses were performed.

Results: Family caregivers' (n=153) support needs varied over time across several domains. Unmet needs were associated with lower baseline preparedness for caregiving, but a greater improvement in preparedness over time. When needs were met, family caregivers showed a significant improvement in their sense of preparedness.

Conclusions: Support needs and preparedness for caregiving are closely related. Addressing support needs is important to enhance preparedness.

Place, publisher, year, edition, pages
2026. Vol. 32, no 5, p. 232-240
Keywords [en]
Family caregiver, Life-threatening illness, Palliative care nurse, Palliative home care, Preparedness for caregiving, Support needs
National Category
Palliative Medicine and Palliative Care Nursing
Research subject
The Individual in the Welfare Society, Palliative Care
Identifiers
URN: urn:nbn:se:esh:diva-12134DOI: 10.12968/ijpn.2025.0102OAI: oai:DiVA.org:esh-12134DiVA, id: diva2:2062261
Available from: 2026-05-26 Created: 2026-05-25 Last updated: 2026-05-26Bibliographically approved

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Bauman, CeciliaWallin, ViktoriaKreicbergs, UlrikaAlvariza, Anette

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34567896 of 31
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