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Gaber, S. N., Mattsson, E., Klarare, A., Dawes, J. & Rapaport, P. (2025). An intersectional perspective on digital health: Longitudinal narratives and observations with older and middle-aged women experiencing homelessness. The Gerontologist, 65(4), 1-12
Open this publication in new window or tab >>An intersectional perspective on digital health: Longitudinal narratives and observations with older and middle-aged women experiencing homelessness
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2025 (English)In: The Gerontologist, ISSN 0016-9013, E-ISSN 1758-5341, Vol. 65, no 4, p. 1-12Article in journal (Refereed) Published
Abstract [en]

Background and Objectives: People experiencing homelessness and older people experience barriers as health and social care services are increasingly delivered online, however, there is limited knowledge about how this relates to older and middle-aged women experiencing homelessness, especially those from minoritized and/or migrant communities. We aimed to explore how technology, including digital health, can help or hinder older and middle-aged women to navigate paths through and out of homelessness.

Research Design and Methods: This 16-month qualitative longitudinal study utilized narrative interviews and participant observations with seven older and two middle-aged women experiencing homelessness, in London, England. Additionally, we observed interactions between the women experiencing homelessness and two information and communications technology class facilitators. We collected and analyzed data using a narrative, interpretative approach. An advisory board of women with lived experiences of homelessness supported the interpretation of findings and development of practice and policy recommendations.

Results: We present our findings as three composite narrative vignettes co-constructed with the participants: (1) "No, I’m not taking this telephone appointment"; (2) "Technology doesn’t judge you"; and (3) "You have to be a digital person now". The findings illuminate determinants of digital health equity related to aging, gender, and migration status among older and middle-aged women experiencing homelessness.

Discussion and Implications: Using an intersectional lens, we provide recommendations about how to better align digital health to the needs of older and middle-aged women experiencing homelessness. The findings will inform intervention development.

Keywords
Women's health, Digital divide, eHealth, Homeless, Qualitative research
National Category
Social Work Nursing
Research subject
Människan i välfärdssamhället, Vårdvetenskap
Identifiers
urn:nbn:se:esh:diva-11279 (URN)10.1093/geront/gnaf021 (DOI)001460320300001 ()39869439 (PubMedID)
Note

In collaboration with: Women Advisory Board for Inclusion Health. Ersta Möjlighet, Stockholm, Sweden.

Available from: 2025-09-10 Created: 2025-02-11 Last updated: 2025-09-22Bibliographically approved
Vamstad, J., Klarare, A., Agius, J. & Mattsson, E. (2025). Seeking public assistance to escape violence: A study on relocation co-created with women with lived experience of homelessness. International Review of Sociology, 35(1), 72-88
Open this publication in new window or tab >>Seeking public assistance to escape violence: A study on relocation co-created with women with lived experience of homelessness
2025 (English)In: International Review of Sociology, ISSN 0390-6701, E-ISSN 1469-9273, Vol. 35, no 1, p. 72-88Article in journal (Refereed) Published
Abstract [en]

Why are so few women given public assistance to relocate away from violence? This article will try to answer this question using findings from a study co-created by women with lived experiences and academic researchers. Public assistance for this group is, in Sweden, a right granted by the national Social Services Act, but a significant proportion of women in need of it do not receive it. A survey of local social services reveals a pattern of chance, low priorities, and lack of awareness of this group within the public administration. The pattern is the same for women with children, in spite of their additional legal protection.

Keywords
Discretion, Public administration, Relocation, Social services, Violence
National Category
Social Work
Identifiers
urn:nbn:se:esh:diva-11260 (URN)10.1080/03906701.2025.2450444 (DOI)001407584200001 ()
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2020-00169
Available from: 2025-06-27 Created: 2025-01-29 Last updated: 2025-09-22Bibliographically approved
Klarare, A., Ekström, V., Godskesen, T., Westman, J., Mattsson, E. & Kneck, Å. (2025). Treatment of trauma-related conditions for people in homelessness: A scoping review. Journal of social distress and the homeless, 34(1), 115-124
Open this publication in new window or tab >>Treatment of trauma-related conditions for people in homelessness: A scoping review
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2025 (English)In: Journal of social distress and the homeless, ISSN 1053-0789, E-ISSN 1573-658X, Vol. 34, no 1, p. 115-124Article, review/survey (Refereed) Published
Abstract [en]

People in homelessness face significant health inequities, with tri-morbidity, exposure to violence, substance use- and post-traumatic stress disorder. The aim of this scoping review was to describe treatments for trauma-related conditions for persons in homelessness. Systematic searches were performed in three databases: PubMed, PsycInfo and Scopus, guided by the PRISMA checklist. Nine studies fulfilled the criteria and were included in the review. Results show no randomized studies specifically focusing on treatment of trauma-related conditions for people in homelessness. Studies described interventions or programs that focused on consolidating and developing participants’ own strengths and skills to better navigate life with the challenges of homelessness, trauma, and PTSD. Treatment of trauma-related conditions may have positive effects for people in homelessness, as for others. Multimodal treatments, developing personal strengths and skills for people in homelessness, show potential to decrease trauma symptoms, however, more robust studies are needed for inferences and recommendations. 

Keywords
Homelessness, Scoping review, Therapies, Trauma, Treatment
National Category
Social Work Nursing
Identifiers
urn:nbn:se:esh:diva-10708 (URN)10.1080/10530789.2024.2310948 (DOI)001159810700001 ()
Funder
Swedish Research Council, 2019-01095Forte, Swedish Research Council for Health, Working Life and Welfare, 2020-169
Available from: 2025-06-27 Created: 2024-02-13 Last updated: 2025-09-22Bibliographically approved
Bockgård, G., Mattsson, E., von Essen, L. & Klarare, A. (2024). Collaborative Interpretation of Researcher-Generated Photo-Elicitation Findings: Insights From Women With Lived Experience of Homelessness. Qualitative Health Research, 34(7), 676-690
Open this publication in new window or tab >>Collaborative Interpretation of Researcher-Generated Photo-Elicitation Findings: Insights From Women With Lived Experience of Homelessness
2024 (English)In: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, Vol. 34, no 7, p. 676-690Article in journal (Refereed) Published
Abstract [en]

Interviews with individuals experiencing homelessness can be challenging for various reasons, including mental and physical health issues, substance use, and negative experiences with authority figures. Researchers have used photos to facilitate communication and empower participants during data collection. We analyzed data from a previous study to explore the use of researcher-generated photos during interviews about health with 13 women experiencing homelessness. Conversation analysis revealed clear patterns regarding the use of the photos during the interviews. The photos were referred to 118 times over the total interview length, 6 hours and 23 minutes, with the interviewer making 62% of the referrals and the women accounting for 38%. Fifty-nine percent of the referrals occurred within the first 5 minutes of the interviews. The women used the photos to trigger associations and emotions, to describe photo content, or in a minor role during the interview. Interpretations from an advisory board of six women with lived experiences of homelessness suggested that the photos did not engage participants as intended, highlighting the importance of considering participants’ perspectives when designing photo-elicitation methods. The feedback also provided valuable insights into interview locations and incentives in research that may have influenced the women’s willingness to use the photos. This study emphasizes the importance of understanding the complexity of choosing researcher-generated photos in interviews with underserved, hard-to-reach populations.

Keywords
Homelessness, Photo-elicitation, Researcher-generated photos, Women, Qualitative
National Category
Health Sciences
Identifiers
urn:nbn:se:esh:diva-10629 (URN)10.1177/10497323231224330 (DOI)38235734 (PubMedID)
Available from: 2024-01-18 Created: 2024-01-18 Last updated: 2025-09-22Bibliographically approved
Karlsson Rosenblad, A., Klarare, A., Rapaport, P., Mattsson, E. & Gaber, S. N. (2024). Health literacy and its association with mental and spiritual well-being among women experiencing homelessness. Health Promotion International, 39(2)
Open this publication in new window or tab >>Health literacy and its association with mental and spiritual well-being among women experiencing homelessness
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2024 (English)In: Health Promotion International, ISSN 0957-4824, E-ISSN 1460-2245, Vol. 39, no 2Article in journal (Refereed) Published
Abstract [en]

Low health literacy (HL) has been linked to low self-rated health, reduced efficacy of behaviour change, and challenges in preventing, treating, or managing health conditions. People experiencing homelessness are at risk of poor HL; however, few studies have investigated HL in relation to mental and spiritual well-being among people experiencing homelessness in general, or women experiencing homelessness specifically. This cross-sectional study of 46 women experiencing homelessness in Stockholm, Sweden, recruited during the period October 2019–December 2020, aimed to examine how HL was associated with mental and spiritual well-being among women experiencing homelessness. Participants answered questions about socio-demographic characteristics (age, length of homelessness, education) and digital technology (mobile phone/the Internet) use, in addition to Swedish language versions of three questionnaires administered through structured, face-to-face interviews: the Communicative and Critical Health Literacy Scale, the General Health Questionnaire 12 and the Functional Assessment of Chronic Illness Therapy-Spiritual Well-Being. Data were analysed using linear regression, which revealed statistically significant associations between HL and mental well-being (p = .009), and between HL and spiritual well-being (p = .022). However, neither socio-demographic characteristics nor digital technology use were significantly associated with HL. In conclusion, promoting HL may improve mental and spiritual well-being in this vulnerable population. An advisory board of women with lived experiences of homelessness (n = 5) supported the interpretation of the findings and emphasised the need to consider HL in relation to basic needs such as ‘housing first’. Moreover, health information and services should be accessible to people with different degrees of HL.

Place, publisher, year, edition, pages
Oxford University Press, 2024
Keywords
Health literacy, Homelessness, Psychological distress, Spirituality, Psychological well-being, Women’s health
National Category
Nursing Public Health, Global Health and Social Medicine
Identifiers
urn:nbn:se:esh:diva-10734 (URN)10.1093/heapro/daae019 (DOI)
Funder
Swedish Research Council, 2019-01095Forte, Swedish Research Council for Health, Working Life and Welfare, 2020-00169
Note

In collaboration with: Women Advisory Board for Inclusion Health.

Available from: 2024-03-05 Created: 2024-03-05 Last updated: 2025-09-22Bibliographically approved
Jakobsen, M. A., Tørmoen, T. L., Klarare, A. & Steindal, S. A. (2024). Home care for patients with opioid use disorders: A qualitative study of registered nurses' experiences of pain management. Nursing Open, 11(6), Article ID e2212.
Open this publication in new window or tab >>Home care for patients with opioid use disorders: A qualitative study of registered nurses' experiences of pain management
2024 (English)In: Nursing Open, E-ISSN 2054-1058, Vol. 11, no 6, article id e2212Article in journal (Refereed) Published
Abstract [en]

Aim: To explore registered nurses' experiences with pain management in patients with opioid use disorder (OUD) in home care.

Design: Qualitative explorative-descriptive design.

Methods: Data were collected via nine individual semi-structured interviews with registered nurses working in home care meeting patients with OUD. Data were analysed using systematic text condensation.

Results: Three categories were identified: Reciprocity in relationships and a professional approach enhance pain management; Discrepancies between guidelines, patient-reported pain and RNs' observations challenge pain management; and Interprofessional collaboration makes or breaks pain management.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2024
Keywords
Analgesics, Chronic pain, Home care services, Nurses, Opioid, Opioid‐related disorder, Pain, Pain management, Qualitative research
National Category
Nursing Drug Abuse and Addiction
Identifiers
urn:nbn:se:esh:diva-10896 (URN)10.1002/nop2.2212 (DOI)
Available from: 2024-06-14 Created: 2024-06-14 Last updated: 2025-09-22Bibliographically approved
Klarare, A., Vamstad, J., Mattsson, E., Kneck, Å. & Salzmann-Erikson, M. (2024). Social rights in relation to digitalization, mobile phone, and internet use – experiences of women in homelessness: A qualitative study. Critical Public Health, 34(1), 1-16
Open this publication in new window or tab >>Social rights in relation to digitalization, mobile phone, and internet use – experiences of women in homelessness: A qualitative study
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2024 (English)In: Critical Public Health, ISSN 0958-1596, E-ISSN 1469-3682, Vol. 34, no 1, p. 1-16Article in journal (Refereed) Published
Abstract [en]

Given the fact that women in homelessness face considerable health inequities, the question of how digitalization can be understood in relation to social rights and right to health surfaces. The objective of this qualitative interview study was to explore the use of mobile phones and internet for women experiencing homelessness. Women (n = 26) shared experiences of healthcare access by using a mobile phone or internet. Data were analyzed using NVivo software. The results are presented in two themes: Conditions and circumstances of having a mobile phone; and Structural and intrapersonal challenges affecting social rights. The results show that digitalization actively influenced everyday life for women experiencing homelessness. Whether women wanted it to or not, digitalization presents a line of demarcation for participation and inclusion or exclusion, in health- and social-care services.

Place, publisher, year, edition, pages
Informa UK Limited, 2024
Keywords
Digitalization, Health inequalities, Marginalization, Socio-economic
National Category
Social Work Nursing
Identifiers
urn:nbn:se:esh:diva-10801 (URN)10.1080/09581596.2024.2342334 (DOI)
Funder
Swedish Research Council, 2019-01095
Available from: 2024-05-13 Created: 2024-05-13 Last updated: 2025-09-22Bibliographically approved
Gaber, S., Klarare, A., Mattsson, E. & Karlsson Rosenblad, A. (2023). A comparison of perceptions of caring behaviours among women in homelessness, Registered Nurses and nursing students. Scandinavian Journal of Caring Sciences, 37(4), 959-969
Open this publication in new window or tab >>A comparison of perceptions of caring behaviours among women in homelessness, Registered Nurses and nursing students
2023 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 37, no 4, p. 959-969Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: The population of women in homelessness in Europe is increasing and women in homelessness experience multiple healthcare needs. However, there is insufficient understanding about how perceptions of caring behaviours compare between women in homelessness as patients and nurses in their clinical practice.

AIM: This study aimed to investigate perceptions of caring behaviours among women in homelessness, Registered Nurses and nursing students.

METHODS: A cross-sectional design was used with convenience sampling to recruit groups of women in homelessness (n = 37), Registered Nurses (n = 92) and nursing students (n = 142) in Stockholm, Sweden. Between August 2019 and December 2020, data were collected through face-to-face interviews or online, using the Caring Behaviours Inventory-24 instrument. Data were analysed using descriptive statistics and group-comparing hypothesis tests.

RESULTS: Overall, women in homelessness' perceptions of caring behaviours were significantly lower than nursing students (p < 0.001), who in turn scored significantly lower than Registered Nurses (p < 0.001). The Knowledge and Skill domain had the highest score, and the Connectedness domain had the lowest score in all three groups. The ranking of the individual items according to score varied between the groups. However, all three groups had the highest score for the Knowing how to give shots, IVs, etc., item and the lowest score for the Helping the patient to grow item.

CONCLUSION: Healthcare providers and nurse educators should consider incongruences and congruences in caring behaviours to better prepare Registered Nurses and nursing students to contribute to increased health equity, and more targeted clinical practice for women in homelessness.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2023
Keywords
Caring behaviours, Homelessness, Nurse-patient relations, Nursing students, Registered nurses, Women
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-9426 (URN)10.1111/scs.13071 (DOI)000758136400001 ()35187681 (PubMedID)
Funder
Swedish Research Council, 2019-01095Forte, Swedish Research Council for Health, Working Life and Welfare, 2020-00169
Available from: 2022-02-28 Created: 2022-02-28 Last updated: 2025-09-22Bibliographically approved
Steindal, S. A., Nes, A. A., Godskesen, T., Holmen, H., Winger, A., Österlind, J., . . . Klarare, A. (2023). Advantages and Challenges of Using Telehealth for Home-Based Palliative Care: A Systematic Mixed Studies Review. Journal of Medical Internet Research, 25
Open this publication in new window or tab >>Advantages and Challenges of Using Telehealth for Home-Based Palliative Care: A Systematic Mixed Studies Review
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2023 (English)In: Journal of Medical Internet Research, E-ISSN 1438-8871, Vol. 25Article, review/survey (Refereed) Published
Abstract [en]

Background: Owing to the increasing number of people with palliative care needs and the current shortage of health care professionals (HCPs), providing quality palliative care has become challenging. Telehealth could enable patients to spend as much time as possible at home. However, no previous systematic mixed studies reviews have synthesized evidence on patients’ experiences of the advantages and challenges of telehealth in home-based palliative care.

Objective: In this systematic mixed studies review, we aimed to critically appraise and synthesize the findings from studies that investigated patients’ use of telehealth in home-based palliative care, focusing on the advantages and challenges experienced by patients.

Methods: This is a systematic mixed studies review with a convergent design. The review is reported according to the PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) statement. A systematic search was performed in the following databases: Allied and Complementary Medicine Database, CINAHL, Cochrane Central Register of Controlled Trials, Embase, Latin American and Caribbean Health Sciences Literature, MEDLINE, PsycInfo, and Web of Science. The inclusion criteria were as follows: studies using quantitative, qualitative, or mixed methods; studies that investigated the experience of using telehealth with follow-up from HCPs of home-based patients aged ≥18; studies published between January 2010 and June 2022; and studies published in Norwegian, Danish, Swedish, English, Portuguese, or Spanish in peer-reviewed journals. Five pairs of authors independently assessed eligibility of the studies, appraised methodological quality, and extracted data. The data were synthesized using thematic synthesis.

Results: This systematic mixed studies review included 41 reports from 40 studies. The following 4 analytical themes were synthesized: potential for a support system and self-governance at home; visibility supports interpersonal relationships and a joint understanding of care needs; optimized information flow facilitates tailoring of remote caring practices; and technology, relationships, and complexity as perpetual obstacles in telehealth.

Conclusions: The advantages of telehealth were that patients experience a potential support system that could enable them to remain at home, and the visual features of telehealth enable them to build interpersonal relationships with HCPs over time. Self-reporting provides HCPs with information about symptoms and circumstances that facilitates tailoring care to specific patients. Challenges with the use of telehealth were related to barriers to technology use and inflexible reporting of complex and fluctuating symptoms and circumstances using electronic questionnaires. Few studies have included the self-reporting of existential or spiritual concerns, emotions, and well-being. Some patients perceived telehealth as intrusive and a threat to their privacy at home. To optimize the advantages and minimize the challenges with the use of telehealth in home-based palliative care, future research should include users in the design and development process.

Place, publisher, year, edition, pages
JMIR Publications, 2023
Keywords
Digital health, eHealth, Health care technology, Home-based palliative care, Review, Systematic mixed studies review, Telemedicine, Mobile phone
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-10126 (URN)10.2196/43684 (DOI)000936731300001 ()36912876 (PubMedID)
Available from: 2023-03-13 Created: 2023-03-13 Last updated: 2025-09-22Bibliographically approved
Mattsson, E. & Klarare, A. (2023). Kvinnor far illa inom ramen för samhällets institutioner. Dagens arena (2023-04-14)
Open this publication in new window or tab >>Kvinnor far illa inom ramen för samhällets institutioner
2023 (Swedish)In: Dagens arena, no 2023-04-14, p. 1Article in journal, News item (Other (popular science, discussion, etc.)) Published
Abstract [sv]

Vårdprogram, journalsystem och arbetsrutiner bör ändras för att öka säkerheten för kvinnor med skyddade personuppgifter. 

Place, publisher, year, edition, pages
Stockholm: , 2023. p. 1
National Category
Health Sciences
Identifiers
urn:nbn:se:esh:diva-10172 (URN)
Available from: 2023-04-24 Created: 2023-04-24 Last updated: 2025-09-22Bibliographically approved
Projects
Inclusion health for women in homelessness - development, feasibility and implementation of interventions [2020-00169_Forte]; Marie Cederschiöld University; Publications
Klarare, A., Mattsson, E., Gaber, S. N., Rapaport, P. & Rosenblad, A. (2026). Associations between violence and psychological distress among women experiencing homelessness: A cross-sectional study. Violence against Women, 32(9), 2597-2617Vamstad, J., Klarare, A., Agius, J. & Mattsson, E. (2025). Seeking public assistance to escape violence: A study on relocation co-created with women with lived experience of homelessness. International Review of Sociology, 35(1), 72-88Klarare, A., Ekström, V., Godskesen, T., Westman, J., Mattsson, E. & Kneck, Å. (2025). Treatment of trauma-related conditions for people in homelessness: A scoping review. Journal of social distress and the homeless, 34(1), 115-124Eriksson Lundström, J., Gaber, S. N. & Mattsson, E. (2025). Valuing vulnerability: A collaborative and co-produced approach to developing resilient information systems for and by women with lived experience of homelessness. In: : . Paper presented at European Conference on Information Systems (ECRIS) 2025, Amman, Jordan, June 12-18, 2025. Gaber, S. N., Rydeman, I.-B., Mattsson, E. & Kneck, Å. (2024). Asking about violence and abuse among patients experiencing homelessness: A focus group study with healthcare professionals. BMC Health Services Research, 24, Article ID 531. Bockgård, G., Mattsson, E., von Essen, L. & Klarare, A. (2024). Collaborative Interpretation of Researcher-Generated Photo-Elicitation Findings: Insights From Women With Lived Experience of Homelessness. Qualitative Health Research, 34(7), 676-690Karlsson Rosenblad, A., Klarare, A., Rapaport, P., Mattsson, E. & Gaber, S. N. (2024). Health literacy and its association with mental and spiritual well-being among women experiencing homelessness. Health Promotion International, 39(2)Klarare, A., Vamstad, J., Mattsson, E., Kneck, Å. & Salzmann-Erikson, M. (2024). Social rights in relation to digitalization, mobile phone, and internet use – experiences of women in homelessness: A qualitative study. Critical Public Health, 34(1), 1-16Anonymous, . (2024). When the wounds heal but the soul bleeds: A lived experience narrative. Journal of Psychiatric and Mental Health Nursing, 31(5), 701-704Gaber, S., Klarare, A., Mattsson, E. & Karlsson Rosenblad, A. (2023). A comparison of perceptions of caring behaviours among women in homelessness, Registered Nurses and nursing students. Scandinavian Journal of Caring Sciences, 37(4), 959-969
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0001-7935-3260

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