Resonance, self-reflection, and preparedness through a web-based intervention for family caregivers of patients with life-threatening illness receiving specialised home careShow others and affiliations
2025 (English)In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 23, p. 1-7, article id e48Article in journal (Refereed) Published
Abstract [en]
Objectives: In home-based care for severely ill patients, family caregivers’ contributions are crucial. This study aimed to explore how a web-based psychoeducational intervention influences family caregivers’ experiences in addressing challenges while caring for a patient with life-threatening illnesses during specialized home care.
Methods: This qualitative study undertook semi-structured interviews with family caregivers of patients with life-threatening illness receiving specialized home care. Family caregivers participated in a randomized controlled trial evaluating a psychoeducational intervention delivered through a website. Interviews were performed with 17 family caregivers; 13 spouses, 2 adult children, 1 parent, and 1 sibling, and analyzed using qualitative content analysis.
Results: The results indicate that the intervention resonated with the family caregivers’ situation which gave them comfort and awareness. It inspired self-reflection on the caregiver role that provided new insights and encouraged communication with the patient. The intervention prepared family caregivers for the patient’s progressing illness and death. While preparing was a help for some, others did not feel ready to face this, which led them to avoid parts of the website.
Significance of results: This psychoeducational web-based intervention guided family caregivers as they addressed challenges in caregiving and prepared for the future, and they valued having access to such an intervention. In a time of decreasing healthcare resources, web-based support may be a useful alternative to in-person interventions. It is important to continue developing, evaluating, and implementing web-based interventions to meet the needs of family caregivers.
Place, publisher, year, edition, pages
2025. Vol. 23, p. 1-7, article id e48
Keywords [en]
Palliative care, Family caregivers, Web-based support, Intervention, Home care
National Category
Palliative Medicine and Palliative Care Nursing
Research subject
The Individual in the Welfare Society, Palliative Care
Identifiers
URN: urn:nbn:se:esh:diva-11252DOI: 10.1017/s1478951524002086PubMedID: 39834181OAI: oai:DiVA.org:esh-11252DiVA, id: diva2:1930834
Funder
Swedish Cancer Society, 21 1385 Pj 01 HSwedish Research Council, 2021-008602025-01-242025-01-242025-01-24Bibliographically approved