1213141516171815 of 24
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Resonance, self-reflection, and preparedness through a web-based intervention for family caregivers of patients with life-threatening illness receiving specialised home care
Marie Cederschiöld University, Department of Health Care Sciences.ORCID iD: 0000-0003-4315-7676
Marie Cederschiöld University, Department of Health Care Sciences.ORCID iD: 0000-0001-6019-4335
Marie Cederschiöld University, Department of Health Care Sciences. Sophiahemmet University, Sweden.ORCID iD: 0000-0002-8780-5922
Centre for Palliative Care St Vincents, Australia; The University of Melbourne, Australia; Vrije University, Belgium.
Show others and affiliations
2025 (English)In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 23, p. 1-7, article id e48Article in journal (Refereed) Published
Abstract [en]

Objectives: In home-based care for severely ill patients, family caregivers’ contributions are crucial. This study aimed to explore how a web-based psychoeducational intervention influences family caregivers’ experiences in addressing challenges while caring for a patient with life-threatening illnesses during specialized home care.

Methods: This qualitative study undertook semi-structured interviews with family caregivers of patients with life-threatening illness receiving specialized home care. Family caregivers participated in a randomized controlled trial evaluating a psychoeducational intervention delivered through a website. Interviews were performed with 17 family caregivers; 13 spouses, 2 adult children, 1 parent, and 1 sibling, and analyzed using qualitative content analysis.

Results: The results indicate that the intervention resonated with the family caregivers’ situation which gave them comfort and awareness. It inspired self-reflection on the caregiver role that provided new insights and encouraged communication with the patient. The intervention prepared family caregivers for the patient’s progressing illness and death. While preparing was a help for some, others did not feel ready to face this, which led them to avoid parts of the website.

Significance of results: This psychoeducational web-based intervention guided family caregivers as they addressed challenges in caregiving and prepared for the future, and they valued having access to such an intervention. In a time of decreasing healthcare resources, web-based support may be a useful alternative to in-person interventions. It is important to continue developing, evaluating, and implementing web-based interventions to meet the needs of family caregivers.

Place, publisher, year, edition, pages
2025. Vol. 23, p. 1-7, article id e48
Keywords [en]
Palliative care, Family caregivers, Web-based support, Intervention, Home care
National Category
Palliative Medicine and Palliative Care Nursing
Research subject
The Individual in the Welfare Society, Palliative Care
Identifiers
URN: urn:nbn:se:esh:diva-11252DOI: 10.1017/s1478951524002086PubMedID: 39834181OAI: oai:DiVA.org:esh-11252DiVA, id: diva2:1930834
Funder
Swedish Cancer Society, 21 1385 Pj 01 HSwedish Research Council, 2021-00860Available from: 2025-01-24 Created: 2025-01-24 Last updated: 2025-01-24Bibliographically approved

Open Access in DiVA

fulltext(457 kB)96 downloads
File information
File name FULLTEXT01.pdfFile size 457 kBChecksum SHA-512
d49f80f84674a245ff054aa0a92589bc8e2ca07243886c32759a3af4b8c1ce60b0fa8367c830e82b4e2140605a227b5da9f0a0dfa9bd028f4f72d73a88a9f993
Type fulltextMimetype application/pdf

Other links

Publisher's full textPubMed

Authority records

Bauman, CeciliaWallin, ViktoriaDoveson, SandraKreicbergs, UlrikaAlvariza, Anette

Search in DiVA

By author/editor
Bauman, CeciliaWallin, ViktoriaDoveson, SandraKreicbergs, UlrikaAlvariza, Anette
By organisation
Department of Health Care Sciences
In the same journal
Palliative & Supportive Care
Palliative Medicine and Palliative CareNursing

Search outside of DiVA

GoogleGoogle Scholar
Total: 98 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 380 hits
1213141516171815 of 24
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf